Manna, Quail, and Breast milk, part 1

Then the Lord said to Moses, “I will rain down bread from heaven for you. The people are to go out each day and gather enough for that day. In this way I will test them and see whether they will follow my instructions.”
Exodus 16:4-6
Please read the entirety of Exodus 16

During my pregnancy with Sam, the doctors prepared me for the fact that he may never breast feed because of his heart condition. I prepared myself to pump and feed him bottles, grateful to have a baby to feed at all while quietly mourning a bonding experience I had so looked forward to with each of my babies. Four days after his birth, to my surprise, his doctors turned to me in rounds and asked me if I would be willing to try to nurse him. Willing? Tears sprang to my eyes at this unexpected gift. To everyone’s shock and joy, Sam nursed like a champ. I sat in the rocking chair nursing our miracle baby/nursing savant and let the tears of gratitude roll over me.

A couple months later, I brought Sam in for one of his frequent heart check-ups at Children’s. I was tired. Wait; tired’s not the word. Bone-bleached fatigued:, working endless days to keep the house and laundry as sterile as possible for our vulnerable heart baby, while nursing him day and night and trying to keep a precocious, bored, and frustrated two year old off of his newborn brother and out of trouble. His cardiologist sighed: “Okay. Sam’s not gaining enough weight. I think it’s because he’s burning too many calories nursing. So what I want to do is have you pump, and we’ll fortify every bottle with a full serving of formula.”

Okay, I could do that. Just for a few months, right? I put on a brave face for the doc, agreed to the new feeding regiment, and headed on home. But somewhere between the sliding doors of Children’s exit and our car door, reality slapped me in the face: How in the world was I going to have time to do this? I had no back stock of frozen breast milk. I had, for the first time in my life, struggled to provide enough for Sam (due to a little bit of stress and a lot of work). And now, I had to go home and produce like a dairy cow every 2.5-3 hours, 8 times a day.

Pumping takes time, time I didn’t have. It was hard enough to nurse Sam while Abraham ran loose around the house. Now, I would have to double the time for every feeding: first pumping, then feeding Sam. Sam needed every last ounce of attention and touch and love I had to give him to stay healthy, not to mention every single probiotic my body could provide him. As I drove home through Seattle traffic, I formulated a plan: I would build a back-stock, some way some-how. I would pump like the dickens, get ahead of this problem, stock that freezer!

Only I couldn’t. Every feeding was always a little short of a full bottle. Or, I would be so tired I would knock a full bottle of just-pumped milk over, or Sam would throw a feeding up because of his meds. And I would have to start from scratch, usually after going hysterical.

I was going crazy as an overtime dairy cow. Those poor bovines! I developed a deep sympathy for them during my pumping-only days. And, then, one day while I was disciplining Abraham and pumping and holding a hungry, crying Sam in a messy house with tears streaming down my face, God broke through: this is how they felt in the wilderness gathering Manna and Quail. I physically stopped my milking frenzy and put my forehead to the dirty kitchen counter. OHHHHHHH.

I realized in that instant that I couldn’t do enough to keep Sam alive. I realized I couldn’t stock enough in the freezer, pump enough, work hard enough, to eliminate every germ that he was exposed to, to make his body grow. I realized that those mamas in the wilderness, who led their children out of a bad place but a place where at least their babies’ bellies would be filled, must have been as scared as I was. And I realized that a big part of the wilderness is shedding our silly idea that we can work hard enough, be smart enough, to stock pile enough to protect our families from the horrible realities of life.

Manna and Quail were a lesson–first and foremost–in submission. When we submit to a God who can provide all, and stop pretending we are God ourselves, we can stop chasing our own tails and rest in His provision. And it always comes . Maybe it isn’t what we want, but it is always enough. And I don’t know how Sam got enough breast milk (but he did!) or if that whole dairy cow experience was just a lesson for me to stop freaking out whenever I feel a lack (and I am!). But, there is nothing more frightening than my mother-heart’s panic over my children not being provided for. That panic is a trigger I need to get better at listening to: it’s my signal to put my head on the counter and pray, pray, pray.

I am still learning this lesson, one I think is necessary to live in the promised land. We’ll talk more about this next week, as I feel we’ve just scratched the surface. But I want to leave with you this thought: what if every lack brought us to our knees? What if we saw each physical need as a new place for God to fill us with more of Himself?

What if you are not in a time of stock-piling and saving and storing? What if you are in a season of growing up in your dependence on God? I know I am there, learning to look to heaven with each hunger pain. In the mean time, I will look to one Mother’s example of trusting God, namely One who didn’t even know where her baby would be born. Yet, God provided for her Son. And he provides for mine just the same.

“for the Mighty One has done great things for me, and holy is his name . . . He has filled the hungry with good things . . . ” Luke 1:49, 53

Amen.

Taylor

Helping helps!

Team CJA - Tears Event

In honor of Pregnancy and Infant Loss Awareness Month . . .

It had been a month since Caleb died. The dust was settling, and people were getting on with their lives. I was sitting on the couch in the living room staring at the television, googling crazy things like “Why did this happen to me, God?” and watching youtube videos made by other grieving moms that made me cry so hard I would eventually pass out from exhaustion. FUN TIMES. (Note: one of the unfair things about a late-term still birth or infant loss is that I (like many moms) was already on maternity leave. Our bodies are still recovering from delivery, even if there is no child to care for. There is a hole ripped in time, and we are stuck in a maternity-leave limbo with no baby.)

And then, I prayed, “Lord, please give me something to do or I am going to go crazy.”

Almost instantly, Jack received an email from a God-conduit–my friend Kasi–about the TEARS foundation . I went to therapy that week, and my therapist, Phyllis–another God-conduit–handed me a TEARS advertisement. Their annual walk was coming up; there was still time to enter a “Caleb Joshua Arthur” team. A path cleared before me: I would assemble a team to walk in memory of our son, and raise money for other families who needed help with burial expenses. God had answered my prayers!

I spent the next few weeks in a frenzied effort to honor my son and assemble the biggest, most lucrative team ever assembled for the TEARS foundation’s remembrance walk. We showed up in full-force with Caleb’s full name filling up our t-shirts. Family and friends from all around participated, and we felt a roar of support for this angel son of ours. This moment in history could never make up for every sports event we would not attend for him, every graduation we would not listen to his name being called, every first day of school and field trip and every single thing I was so happy and ready to share with Caleb as his proud mama . . . but this moment in history was a moment in THIS WORLD when my son’s NAME was called, there was a crowd to cheer for him, and we felt proud, proud, proud. I still have tears rolling down my face just remembering how proud we were that day.

The TEARS foundation became an important piece of our grieving Caleb. I plunged into support groups and volunteer opportunities that allowed me to spend time honoring my first born son with people who understood how important that was for me to do.

I gave to fill a hole I couldn’t fill by myself. I am still doing that, in every blog I write and newly grieving friend I reach out to. I don’t know what else to do. And, I promise: it helps. This grief is unbearable on the couch alone googling crazy things and watching youtube videos. It’s too much pressure on my marriage to expect my husband to be the only person I spill my bucket of tears on every night. But, it can be carried with a modicum of grace when we let God use our suffering, our experience, to help others who suffer as well. McKayla Butler is doing that with her blog, “ rainbows for noah: what loss looks like from here .” Sarah Slack and her staff are carrying their griefs to balm others’ sorrows through every funeral they make possible and every support group they gather through the TEARS foundation . The Stillborn, Still loved Guild is working to create awareness and community for those surviving a stillborn child.

There are places for us, friends, to use our holed out hearts for good. There are places we can speak the names of our dead children and rise with pride as their parents. There are places where this deepest agony can be filled with grace. Find your place. And help. It helps, I promise.

God bless you, in your pain and your crazy google moments.

I pray He is with you.

I know He is . . .

Taylor

Miracles and Murmurings

And my God will fully satisfy every need of yours according to His riches in glory.
Philippians 4:19

I must confess: I have spent my whole life judging the Hebrews during their wilderness sojourn. It is difficult for me to watch them murmur against the God who continually, faithfully provides for them. They witness the ten plagues against Egypt, including the smiting of every firstborn male in Egypt. They leave Egypt weighted down by their captors’ treasures after 430 years of bondage, led by a pillar of cloud by day and a pillar of fire by night. And yet, when Pharoah gives chase, they cry to Moses, Was it because there were no graves in Egypt that you brought us to the desert to die? What have you done to us by bringing us out of Egypt? Didn’t we say to you in Egypt, ‘Leave us alone; let us serve the Egyptians’? It would have been better for us to serve the Egyptians than to die in the desert! Number 14:11-12.

When Yahweh again saved them by extraordinary means–parting the Red Sea, providing dry ground for them to walk across the sea floor, and drowning the Egyptians who chased them–and led them into the desert, they continued to grumble when they couldn’t find drinkable water at Mara. He provided water, but then they got hungry. He provided abundant honey-like food, but they wanted meat. He gave them quail to eat, and when Moses was gone just a bit too long talking to Yahweh on their behalf? Bam! They created a golden calf and worshiped it.

It is so easy for me to judge them. Ingrates! But, really, as I think of them throwing their fits every time their basic needs for survival beg to be met, I wonder how many times I have thrown the same tantrum about something much less significant than food, water, and safety . . . Yuck.

Having gone down the pathetic “poor me” path more than my fair share, I am beginning to realize that it never helps me be a better person. Now, I’m not saying that feelings are not completely valid, or that we shouldn’t grieve a loss (of many kinds). We should take time to rest after struggles, and Yahweh even built Sabbath in for us so that we’d have a rest in this wilderness. But, what I am saying is that we need to be darn careful not to cross the line from frustration and grief and exhaustion into grumbling.

Harper Collins (I refer to this Biblical Commentary like I would a friend because I sincerely love this big, buxom book!) points out that there are positive and negative motifs working in the wilderness account. God’s continuous, miraculous provision for his people as a positive motif juxtaposes the Hebrews’ repeated murmurings against Him. They resent the hunger, danger, thirst. But I think it goes deeper than that with them and with me: I think we resent the awareness of our absolute dependence on God . We’d rather think we have some control over our lives.

In Egypt, they were slaves: beaten, raped, starved, thrown out like garbage. And yet, there was a comfort in the familiar that they would rather return to, and a danger in the unknown they kept trying to flee. In the wilderness, the only comfort, the only stability lies in trusting God. And that is hard: ego crushing, dream shattering, dangerous hard. I don’t want to be hungry all the time, and I don’t want to have to live a life where every morning I wake up and ask God just get me through this day, please . But that level of dependence, that level of necessity, is where God does miracles.

I can write a volume about the miracles God has performed throughout my life, starting with all the mornings, time after time, when I opened my Bible or devotional to find exactly the words I needed to brave another day, feeling God so close on the couch, snuggled up with me and my cup of coffee. Isn’t that a miracle? I can write about the miracle of my marriage, thriving and real and growing, a shelter for both Jack and I in the midst of desert. I can write about Christmas mornings with presents under the tree, dinner parties with friends, camping trips, date nights, birthday parties, snuggling warm babies on the couch every morning . . . but this doesn’t sound like a barren wilderness, does it? It sounds like a life: a beautiful one. This beautiful life continuously crops up in the midst of defining hardships.

So I think we need to decide: are we a people who define ourselves on bondage, Pharoah’s armies chasing us, need, and loss? Or are we a people—a Miracle people—who define our lives by Liberation, the parting of the Red Sea, Providence, and Redemption? For every need God’s people experienced, for every cry they uttered in the wilderness, God heard and provided. And while we would all rather never have to know an empty belly or checking account, the need for a pediatric heart surgeon, a priest, or the strength just to get out of bed, our need hollows out in each of our hearts a place for God to move.

Oh geez. I don’t like this. I find myself feeling more and more empathy for those Hebrews all the time.

Let’s pray for Miracle eyes, embedded deep in our hearts, to seek out a God who fills every belly and quenches every thirst.

God bless you,

Taylor

Share your comfort and troubles with a good friend today

2 Corinthians 1:3-7

Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God. For just as we share abundantly in the sufferings of Christ, so also our comfort abounds through Christ. If we are distressed, it is for your comfort and salvation; if we are comforted, it is for your comfort, which produces in you patient endurance of the same sufferings we suffer. And our hope for you is firm, because we know that just as you share in our sufferings, so also you share in our comfort.

We are meant to comfort and encourage each other! Have a great Wednesday!

By your side,
Taylor

In honor of National Pregnancy & Infant Loss Awareness Day

Everyone, I have someone amazing for you to meet. Her name is McKayla Butler, and she is the proud, brave, faithful, and honest mother of Baby Noah. I will allow her to introduce herself and her sweet boy:

i’m noah’s mama.
my name is mccayla and i’m part of the club no one wants to belong to – i lost my baby.

noah hudson butler was born a healthy 7 pounds, 5 ounces on june 5, 2013. the first 24 hours with him were another dimension of bliss. our dreams had come true – we were parents. and we were the happiest we’ve ever been.

then the nightmare began. he started having trouble breathing and things went from bad to worse. 12 days later he was diagnosed with an extremely rare, and fatal, condition called alveolar capillary dysplasia. there was nothing else the doctors could do.

we said goodbye to our sweet boy that night, june 18, 2013, after spending the holiest of days with the one who changed our world forever.

this is my journey of living in the tension between despair and hope as i navigate through this “new normal” without noah. and it’s what loss looks like from here.

I am so excited to share “rainbows for noah” with you because McKayla’s sharing is as gut-wrenchingly honest as it gets, while still anchored in a God bigger than all of our questions and losses. Everyone, meet McKayla. I hope she inspires you as much as she has me.

God bless all of my friends who are aching today,

Taylor

Dear friend whose name I do not know

Dear friend,

It has been over a year since I watched you from across the Cheney Stadium baseball field at the TEARS foundation annual remembrance walk. You were waddling, balancing a belly about to burst. You were surrounded by loved ones, your husband holding your hand. And you wore the same shirt I did. The names were different on the back of each of ours; my shirt had my baby’s name on it, and your shirt bore the name of your own baby. As you walked, head held high in grief and plain ol’ stubborn Mama Love that won’t ever quit, I watched grief slowly overtake you. You slowed your pace, lowered your head to your hand, grabbing that enormous belly. Before you were completely hunched over, they led you to the side of the track. You grabbed the wall, your husband, kept your hand on your belly, as you wretched. Tears rolled down my face for you, my friend, and I wondered if you were thinking what I had: Lord, don’t let my flood of grief mark this next child. Lord, please give me the strength to survive this. Lord, how will we ever survive this?

I knew then that I would probably never know your name. I knew it wasn’t appropriate for me–a complete stranger–to run across that field that day and throw my arms around you, assure you you would survive, tell you that that baby you carried would provide a joy to temper this unrelenting pain. I wanted to tell you that in time, though you never forget the one you lost, a new normal can be found.

The life of a mother who has buried a child is, at best, twisted bliss. For every joy there is a sadness, for every happiness a haunt. Our bodies yearn for our dead children on holidays and would-have-been milestones, whether we acknowledge those yearnings or not. We are mothers, always.

So, dear friend whose name I do not know, I hope these words find you well with a healthy child in your arms and a life worth braving the pain for. I hope you have begun to see snatches of happy, if just for a moment, filtering through the curtains of your grief. Above all, I pray for a peace that can only come in the knowledge that your child is safe in the arms of God, and will be there to greet you when your eyes close for the last time, many years from now.

God bless you, my friend,

Taylor

“I will carry you”

I said to you, “Have no dread or fear . . . The LORD your God, who goes before you, is the one who will fight for you, just as he did for you in Egypt before your very eyes, and in the wilderness, where you saw how the LORD your God carried you, just as one carries a child, all the way that you traveled until you reached this place.” Deuteronomy 1:29-31

All the way that you traveled . . . I can’t believe it’s been 10 weeks since Sam’s surgery. I thought we would be back to normal life by now, settling into the new school year, a new rhythm. Instead, we are just beginning to process what happened to our family this last spring and summer. I didn’t realize this event, this new journey, was a trauma until now. I just walked it, breathed in and out, hoped, endured. But now, as I find it difficult to pull myself out of bed, find myself apologizing to Bram’s preschool teachers because he is 5, 10, or 40 minutes late, cry over a disorganized drawer or overflowing craft closet filled with half-finished projects from two years ago . . . I realize I am just a little bit of a wreck.

At our most recent appointment at Children’s we learned that while Sam is stable now, his right ventricle is not nearly as functional as we had hoped. This means that we are most likely not done with surgeries. We are not done . And, the next surgery he is slated to have in 2-4 years is much more extensive.

We weren’t expecting that, not at all. It hit hard, harder than I have allowed myself to even entertain. Loved ones offer encouraging words, and we are overjoyed that he is stable and happily playing in the backyard today. But the fact of the matter is: this journey continues for us . I thought we were crossing over, getting over this hurdle, and moving on with our lives. But if feels instead that we are caught in yet another limbo, waiting to see what will happen, asking God to intervene, back to wondering if Sam—, and when Sam–

This is not the jubilant crossing-over procession I had envisioned. I envisioned a moment of trumpets (yes, I know, my overly biblical imagination really does over-inflate my expectations at times) blasting a hallelujah tune as we crossed over from the pre-Glenn wilderness into a new heart-stable life with Sam. I pondered which “rocks” I would utilize to build a memorial in remembrance of this crossing over experience (please see Joshua 3 & 4 if my references aren’t making sense).

But the last thing I want to do right now is build a memorial to remember my baby with a tube down his throat pumped full of meds restrained in a crib in the CICU. The last thing I want to think about is how his cries sounded like a newborn once he was extubated because his vocal chords were so scratched. I look at the zipper scar on Sam’s chest ten times a day, and it still pulls in the deep corners of this mother-heart. Even as he plays, I mourn and remember this terrible journey: every step, every breath-holding moment, every echo, every single heart beat.

So, please excuse me as I sit down on the riverbank and curl into myself, take a moment or a year to cry. I mourn this entire journey, all the pain and terror, all the concessions I have made to survive, all the me I have relinquished to keep persisting. I mourn that so much of Sam’s and Abraham’s lives have been experienced through a lens of pain. I want to do over their babyhoods without such desperate mourning and fear. I want to enjoy them again for the first time, with innocent eyes.

But, I suppose that rainbows are born of storms. And we’ve been given two.

I’ve been reading Deuteronomy and Joshua lately, trying to get at the heart of what it is to cross over. Yahweh is adamant throughout the Hebrew Bible that we recount the stories of His victories, all the while keeping alive the anguish of Egypt and the cost of our deliverances. It is our STORY that marks us as a people—God’s people. Our Story continually redeems as it reminds and instructs us again and again about the nature of God’s love for us, and the lengths He will go to woo, save, and carry us through.

I have always assumed that to cross over was to leave behind, shed our wilderness selves, our manna- and quail- eating skins, “shake off our heavy chains”. But what did it mean for the Hebrews? To cross from wilderness to Promised Land?

I am so war-weary, so crossing-over-aged, that I cannot even imagine marching into the Promised land right now. So, I’ll be at the riverbank for a while if any of you need me. I’ll be the heap in the sand, probably eating some cookie dough or drinking a glass of wine.

But even in my heaping, even in my plain-old-“Lord, I can’t walk another step”-ness, He assures me,

Even to your old age I will be the same,
And even to your graying years I will bear you!
I have done it, and I will carry you;
And I will bear you and I will deliver you.

Lord, I’m yours to carry.

On the riverbank,

Taylor

Isaiah 46:4 I will be the same until your old age, and I will bear you up when you turn gray. I have made you, and I will carry you; I will bear and save you. (HCSB)

Isaiah 46:4
I will be the same until your old age,
and I will bear you up when you turn gray.
I have made you, and I will carry you;
I will bear and save you.
(HCSB)